In Memory of Janet Downes

March 8th, 2007
Janet Downes "Just Jan"

Janet Downes "Just Jan"

My name is Janet Downes and I’m a 7 year breast cancer fighter. I don’t call myself a survivor anymore as I’ve been truly battling this disease. We’ve gone many rounds in this fight but I refuse to give up or let it beat me. It may win eventually but I’m going to go down swinging hard and leave my own bruises on it.

I am retired from the US Air Force and currently working on a book about my battle with cancer. I had 2 aunts, maternal & paternal die of this awful disease. Along with a third aunt that survived. Cancer was a word that I was familiar with but you never quite understand until it taps YOU on the shoulder.

In 1998 I was about to celebrate my 40th birthday. I had a wedding theme planned for my party and everyone thought I was nuts. Maybe I am a little but I got tired of seeing everything in the stores that was related to ‘40’ being in black. So I decided to poke a little fun at society because I didn’t feel old. That coupled with the fact that after 19 years of adulthood, I was finally at a place in my life where I was happy with almost every aspect of my life. I’d been married & divorce twice at that time, yet I no longer needed a man to ‘fulfill’ me. I had 3 beautiful children (Nicole, Jasmine & Eugene Jr.) and for the first time, was satisfied with my body. You know what I mean ladies? We always seem to feel that our breasts are too small or too big. Always complaining that something is wrong with our hips, butt or legs. We can always find something wrong with ourselves when we look in the mirror. One day I woke up & decided, I was happy with who I was, just the way I was. So that led me to, marrying myself. I didn’t know it at the time but that little stunt got me international fame. It seems that I was the first woman to think of it and actually carry it out. It was a beautiful wedding and I am happy with myself, even now.

Two months later, I had cancer. I had a modified bilateral mastectomy and went through 6 months of chemotherapy. The way I describe 1998 is like this; I found myself, married myself, lost both my breast & all of my hair. Whew! What a yea!

I was on the mend and after looking at myself in the mirror and saying, put your money where your mouth is Jan. I knew that I didn’t have to have breast to be me. I was still Just Jan. I still loved me and I knew I would be okay. After coming to grips about being breast-less, I decided to get implants. When a doctor told me I could get any size I wanted, I figured, why not? That was my present to myself for enduring what I had just gone through.

Janet Downes - Diva Rider

I began living life to its fullest when in 2000; I felt a lump under my implant. It had returned. Looking back, the news didn’t devastate me as much as the first time, I did it once and could do it again. After taking that lump out, I had 2 months of chemo (all that I could stand because the side effects kicked my butt) and then 7 weeks of radiation. I lost my hair again but even that wasn’t as devastating as the first time because I knew it was coming back when all was done. I began to mend again. Smelling the roses if you will. Everything was beautiful. I was alive & that’s all that mattered to me.

2002, the cancer returned again, in my collar bone. In 2003 it returned again, twice. In 2004 and so on. That’s the short version. Here I am in 2005 and still fighting. I’ve had 16 surgeries in the past 7 years and am about to start on my 7th regiment of chemotherapy. As I said, I’m not technically a survivor but a fighter.

I don’t just fight the cancer; I try to help others through one of the most difficult times in their lives. I joined a group called; The Witness Project because they are a faith based group that goes into churches, schools, anywhere in the community that wants us and give our testimony to other woman. In hopes of teaching more woman about Breast Self exams and standing up for yourself when faced with a diagnosis of cancer. I personally talk to anyone and everyone that I meet. It’s all about being empowered. Cancer can, if you let it, strip away your life. I choose not to let it. As Tim McGraw’s song says, ‘live like you were dying.’ That sums up my life now.

Last year I applied to be a part of the group, Changing Gears but I missed the deadline and was heart broken. But I thank God that I was still around this year to apply and was accepted. Women from all over the world applied for the chance to ride. I’ve always had a special love for Bikes and used to ride years ago. But somehow, I got busy with life & kids and working and didn’t make time for it. When I saw the opportunity to get on a bike again, I jumped at it. Since being accepted I took the Riders Edge course and got my endorsement on my license. While I don’t have a bike of my own, I’ve rented a few bikes to prepare for the ride. There is no better feeling than being on the road on a Harley (or whatever you like) it’s just you and a powerful machine and the road. The thought of riding with 20 other breast cancer survivors, raising money to help other women smitten with this disease and meeting new people along the way has left me giddy with hope.

Janet Downes & Family

I tell people all the time that I’m lucky and blessed. When they hear my story they don’t understand how I can say that. The truth is, cancer can teach you if you let it. It’s taught me so many things in the past 7 years that I’m amazed every day. Cancer knows no color or age boundaries and because of that I’ve had to live that same way. I’ve found new friends and lost others that I thought were friends because of the cancer. I’ve learned not to sweat the small stuff because there is so much more to life. I’ve also learned to have less and less pity parties for one because when you think you have it bad, there is someone that’s always worst.

I keep holding on, waiting for the Cure. I will ride as long as the good Lord lets me and I will enjoy my life as long as He lets me. I wouldn’t have made it this far without God, my family & friends. Especially my brother Ronn who has been like a sister to me. I have two beautiful grandchildren now, Giavonna 3 and Westyn 7 months. No one can tell me, that I am not blessed.

 

Janet Downes
Departed this life Thursday, March 8, 2007 at 7:44am.

Walking in My Shoes “A Survivor’s Story”

February 1st, 2007

Sista Soulja

September, 2001 was a year to remember. Many of you can recall the 11th day of September. We were plagued with terrorist attacks and our nation started a cycle of living a life of disarray. Fear began to take its toll on our lives. Not only was I caught in the loop, I had to deal with the dreadful diagnosis of Breast Cancer.

On September 18, 2001, I was faced with the dreadful dilemma of finding a lump in my breast. For some reason, I had the feeling that was not a naturally good feeling of despair. I felt that something was wrong, not because I felt pain, but maybe it was because of the alien being that was invading my body.

Divas For A CureI immediately sought medical attention that proved to be true. When the doctor completed the test she gave me that dreadful news. When she walked back into the room she found me sitting on the examining table waiting for the news of the results of the pathology report. I remember that day very vividly. The sun was shining beautifully bright outside but when she said those dreadful words, “Yes, you have cancer.” I lost all sight of reality. I instantly lost focus on what she was saying. I no longer recognized that she was still standing in the room with me. I became blind. After getting dressed I left her office and slowly drove home, tears streaming down my face wondering what went wrong.

I immediately felt the need to pray. As I drove home, I saw my life pass before my eyes. I thought about my family that I may not be able to enjoy. I had an 8 year old daughter whom we had adopted and I wouldn’t even be able to watch her grow up. Everything runs through your mind. Well when drove in the yard, I sat there in my car wondering whether I should go inside. Well, my husband had already known because he called me and I broke the news to him over the phone. He was waiting for me to get home. Little did I know, he had called all of my family far and near and broke the news to them.

Now, I had to worry about how they were going to perceive this whole issue. But, without a second thought my phone began to ring off the hook. My sisters and brother called just to see how I was taking this news. I could tell in their voices that they were lost for words and did not know what to say. I broke the ice and said to each of them, “I’m going to be alright.” “I’m going to do what I need to do.” However, I was still crying and wondering did I really believe what I said. They were thinking of me and I was trying to think of them.

My first thoughts were “am I going to die?” After getting over the initial shock, I went back to my doctor and told her to explain again to me what she had told me three days before. I expressed to her that I did not hear a word she said. She acknowledged to me that she knew I did not hear her nor understood. After she explained everything to me again, I told her that I’d made my decision and she needed to put on her boxing gloves and get ready to fight.

Having said that, she said, “That’s what I like to hear.” Then the cycle started. My life became a life of visiting the doctors. I had test here and there preparing for surgery. The cancer was found in my left breast, but I was afraid that it would end up in the other. My diagnosis was “Infiltrating ductul carcinoma.” I used my computer and researched and dissected every word. I started compiling a file on myself. Every time I went to a doctor, I would get copies of everything they did. If they wrote something on a piece of paper, I wanted a copy. If it pertained to my treatment I wanted to know about it. It came time to have the surgery. On October 31, 2001, I had the most sought after costume for Halloween, a hospital gown. I went into the hospital with a bust size of 44DD. When I left the hospital I was flat chested and had to give up 26 lymph nodes.

My cross-over ceremony as a DIVA. My DIVA number #53

The healing process started and I suffered many set backs. I developed an infection in the left breast and it had to be irrigated. I temporarily lost the use of my legs. Chemotherapy started and then the nightmares began. But through it all I perservered keeping God first. My family and friends were a catalyst of my healing. They were there for me when I cried and laughed. I won’t tell anyone that it was easy. But having faith, hope and a healthy dose of laughter makes the pain less severe.

I made it a point to keep positivity in my life. Things that made me happy I did more of them. I set goals of things I wanted to accomplish and did not wait to start them. I found that working on those goals gave me the will to live. I did things that I had not done in my life time. I thought of what it would be like to earn a degree. When I graduated from high school, I couldn’t afford to go to college so I went directly to working full time and forgot about it. Before I knew it I was far along in age. Well, when you’re diagnosed with Cancer you see life differently. Here I was given another chance at life and I wanted to do something positive. I stepped out of my comfort zone and enrolled into college. I had not been to school for over 30 years. I started thinking, “can I do thia?” Well, I did. Now I have almost completed all the requirements of earning an Associates Degree in Criminal Justice.

Me learning to ride 2005 Suzuki C-50 800 CC (husband-teacher)

During my trials I tried to focus on positive things. I tried to make others happy. I bonded with other ladies that had been diagnosed and I found myself being a pillow for them when they were at their weakest moment. Many of them thought of giving up but somehow I found the way to keep them just as motivated. We got through those treatments and celebrated each day of our survival. I understood that everyday I opened my eyes was a day of celebration and I needed to make someone happy. After my diagnosis, I never felt cheated of life. I considered my diagnosis as God’s plan and direction for my life. I felt as though I was a chosen vessel and the honor was bestowed upon me to show others that having cancer was not a death sentence.

My Prize (Survivor II) 2006 Honda Goldwing GL 1800

I can’t take all the credit for my survival, though I must credit my healing to the support of the wonderful man in my life (my husband). He was there for me from day one. I never got tired or at least he never told me he was tired. He took the burden of worry off of me during my healing process. I know I drove him crazy but he never let on to me that he was upset. He did everything to make me happy and calm. As you know, with cancer you should be stress free.

Just as nothing is for certain, the same is with life. There are no guarantees. The prayer of serenity was my stronghold. I asked God daily to grant me the strength to accept the things that I can’t change. Daily someone is diagnosed with cancer and learning all that we can helps to make a change.  Now my life is fulfilled with staying on top of my health and helping others cope. I am now a survivor of 5 years, enjoying life and never dwelling on the things that I can’t do anything about. I make it a point to love everyone. I enjoy meeting new

My Biker name is Sista Soulja

people and sharing with them my “I” story. Just to tell you in writing would not do justice to the things I endured throughout my transition to recovery. It was a long and hard journey but I made the trek in shoes that I would not wish that anyone wear. I learned a lot and as I said earlier, I see life differently. Through this journey I developed a motto that kept me going, “You may take my breast, but you can’t take my heart.”

In Memory of Dr. Carol Welton Kelly

December 31st, 2006

Dr. Carol Welton Kelly – (1944 – 2002)

Shy and reserved as a child, Dr. Carol Welton Kelly’s Mother quickly found that dance brought her child out of her shell. Carol blossomed on the dance floor and her parents provided every opportunity for their daughter to pursue her passion.

As founding director of the dance program at Cedar Crest College, she pioneered the study of human movement potential; from mastering physical technique to scholarly research and the practical application of dance and is honored annually by the awarding of the Carol Welton Kelly Prize in loving memory of her contributions to the field of dance.

Prior to being diagnosed with cancer, she struggled with a lesser known, yet widespread disease called Lupus, a chronic autoimmune disorder that disproportionately affects African-American women. She always believed that steroid treatments for her Lupus were, in part, to blame for the development of her cancer.

Carol spent her life studying, teaching, performing, and embracing the power of movement. She lived to dance… but lost her battle with breast cancer March 3rd, 2002.

www.carolweltonkelly.com

Why We Support M.D. Anderson?

October 31st, 2006

For seven of the past nine years, including 2010, MD Anderson has ranked No. 1 in cancer care in the “America’s Best Hospitals” survey published by U.S. News & World Report.

Research and Clinical Achievements

M. D. Anderson…

  • Ranks first in the number of grants awarded – including 10 Specialized Programs of Research Excellence (SPORE) grants – and total amount of grant dollars from the National Cancer Institute.
  • Demonstrated in clinical studies that “lumpectomy” followed by radiation for breast cancer can be as effective as radical mastectomy, now a standard practice worldwide.
  • Demonstrated that measuring cancer cells circulating in the blood can predict outcomes for patients with advanced breast cancer, thereby helping to identify patients requiring more aggressive treatment to improve survival.
  • Documented for the first time the difference in sensitivity to chemotherapy among different genetic subtypes of breast cancer leading to more effective treatment.
  • Played a leadership role in an international trial demonstrating that raloxifene, like tamoxifen, can prevent or delay the incidence of breast cancer in high-risk women.
  • Pioneered a combined-modality triple treatment strategy for the successful management of locally advanced inflammatory breast cancers, now the standard of care.
  • Demonstrated the efficacy of Taxol against breast cancer, now standard treatment.
  • Showed that chemotherapy can safely be given after the first trimester to pregnant women with breast cancer.
  • Developed mammography technology and showed that mammography can detect breast cancer at early, highly curable stages, leading to adoption of standardized screening mammography.
  • Created the nation’s largest bone marrow transplantation program enabling treatment of over 600 patients with high dose chemotherapy annually.

More Information About M.D. Anderson:

  • In the last 60 years, M. D. Anderson has built a worldwide reputation for excellence in cancer patient care, research, education and prevention. Read more…
  • 10 Steps Toward Diversity – M. D. Anderson owes much of its reputation as a world-class cancer center to a culturally diverse workforce with unique and valuable skills. The Office of Institutional Diversity (OID) builds on that foundation with a 10-point initiative to recruit and retain minority and female employees.
  • In 2008, U.S. News and World Report’s “America’s Best Hospitals” survey ranked M. D. Anderson as the top hospital in the nation for cancer care. M. D. Anderson has achieved the top ranking four times in the past six years and has ranked as one of the top two hospitals for cancer care for 19 years, since the magazine began its annual survey in 1990.

2006 DFAC Check Presentation

October 21st, 2006

We are proud to announce that on October 21, 2006 Divas For A Cure, accompanied by members of the “NABSMC” National Association of Buffalo Soldiers Motorcycle Club (Houston, TX Chapter) presented a check to M.D. Anderson (Nellie B Connally Breast Cancer Center) in the amount of $25,000.

The presentation was hosted at Stubbs Harley-Davidson in Houston, TX

 

[line]

Divas For A Cure Cross-Country Breast Cancer Run

Route for 2006

Return to Top ▲Return to Top ▲